View Message

Lunella Renee is a 4 year old girl from Romania and has been with the agency since birth. She was born with spina bifida [technically a split spine] and is a paraplegic [paralyzed from waist down] with no hope of ever walking. She is at constant risk for pneumonia which can be extremely fatal to her fragile body. She also has Acute Porphyria [extreme sensitivity to light] and it severly effects her nervous system. In order to live, she has to avoid all sunlight (no going outside or going in any room with windows unless they are appropriatly covered). Light from bulbs doesn't hurt her. This disease is very painful and will most likely die if in direct contact of the sunlight. During her life she is at risk for all the following: constant abdominal pain and vomiting, seizures, and mental disturbances [including: hallucinations, depression, and paranoia]. Her heart beats are irregular and much slower than normal. She needs constant medical care.

---

Please keep us updated.